Even though the Kelly tough tradition began long ago, the real Kelly toughness had not begun until Hunter James Kelly came along. Hunter Kelly has Krabbe’s disease, a degenerative disorder of the nervous system that typically kills its victims in the first 13 months. Hunter James Kelly Research Institute Research Buffalo, NY 201 followers Dedicated to unlock the secrets of myelination and find therapies for diseases such as MS, Leukodystrophies and CMT. Managed by: Alex Bickle: Last Updated: May 24, 2018 Download it once and read it on your Kindle device, PC, phones or tablets. Krabbe, an inherited enzyme disorder that affects 1 in 100,000 children born in the United States, usually only gives a child a few months, perhaps one or two years, to live. When Kelly was inducted into the Pro Football Hall of Fame in 2002, he dedicated his speech to Hunter. Hunter James Kelly, an eight-year-old boy who battled a fatal nervous system disease and inspired his parents to create the Hunter’s Hope Foundation, died on Aug. 5 of respiratory failure.. And it was. Hunter Kelly, son of Hall of Fame quarterback Jim Kelly, has died at the age of 8 from a disease he was born with. Hunter Kelly… Currently, Jim Kelly resides in East Aurora, New York with his wife and their two daughters – Erin and Camryn. Terrible devastation The son of Hall of Fame quarterback Jim Kelly and his wife Jill, Hunter was born on Feb. 14, 1997 (his father’s birthday). Jim Kelly’s son, Hunter, dies (Newsday – AP). Jerry Johnston speaks with Jim and Jill Kelly about how they came to faith and the Foundation they founded in honour of their son Hunter. Hunter Industries is a manufacturer of a full line of irrigation products from controllers, rotors, rotary sprinklers, spray head sprinklers, nozzles, valves, drip irrigation, micro and more. Thus to honor his son, Jim and his wife opened a non-profit organization in 1997 called Hunter’s Hope which spreads national awareness of the disease. The couple also had a son, named Hunter James Kelly, who was born on February 14, 1997. The couple had 3 children named Hunter, Erin and Camryn. Born a few months before Erin’s second birthday, Hunter … When Hunter James Kelly was diagnosed with Krabbe disease shortly after his birth in 1997 — on Jim’s 37th birthday — it was a death sentence. Hunter James Kelly: Birthdate: February 14, 1997: Death: August 05, 2005 (8) Buffalo, Erie County, New York, United States Immediate Family: Son of Jim Kelly and Private Brother of Private and Private . Son, Hunter James Kelly was diagnosed with globoid-cell leukodystrophy and died at the age of 8 on August 5, 2005. The funeral for 8-year-old Hunter James Kelly was meant to be a celebration of life. 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